I have started this blog post and then erased it several times. It’s a sensitive subject, growing your family, adding a baby, especially when you already have three and your pregnancies are extremely high risk. After losing a baby it can feel even more delicate and precarious to discuss pregnancy, child birth, number of children, sibling ages, age gaps and growing your family. Unfortunately many people feel compelled to share their opinions about whether other families should add another baby or stop having babies, especially when it comes to high risk pregnancies or large families. I erased and rewrote this blog post so many times because it is hard to find the right words and to express what is on my heart. We want another baby. We know God wants us to try again. Yes, the next baby could be in a lot of danger in my womb. Yes, we are afraid, but also confident that this is what God wants us to do. I don’t want this post to sound like I’m apologizing for my decision to add another baby to our family. I don’t feel like I have to defend my choice to try again. I don’t owe an explanation to anyone regarding my private decisions about family planning and trying to conceive. BUT, on the other hand, I like being open about this journey. I like sharing my story with all of you and my hope is to be the encouragement that another parent needs when they are struggling with their own family planning decisions. I want others to be inspired not to give up on their dreams of a living child, or a big family or a rainbow baby. I also need your prayers and your support and so I invite you to come on this journey with us to hopefully bring our final baby home.
2016 was the first time I’ve gone an entire year without being pregnant once since 2007. After months and months of prayer we have decided that 2017 is the year that we try for earth baby number four, our last baby. We always wanted at least five children but after developing anti-kell antibodies and losing Lucy we thought that dream was shattered. We mourned the loss of our ability to have more babies as deeply as the loss of our daughter. It was such a sad, hopeless time in our lives. But when Nora was born healthy we realized that we had found the right doctor and the right treatments that worked for us. Even though we can never get our Lucy back on this earth, it was an amazing feeling to realize that our dead dreams of growing our family had been resurrected and maybe, just maybe, we COULD have the big family we always wanted. God has reshaped our hearts and changed our dream of five kids to a dream of four kids. We desperately want Nora to have a sibling friend close in age. We want four kids around the table at Thanksgiving dinner when they are all grown up. We would love for Nora to have a sister on earth, but we know that is up to God. We also know that if we don’t try for this one last baby, we will regret it for the rest of our lives. I knew even while I was pregnant with Nora that I would want one more after her if she survived. I knew God was planting a seed in my heart and growing it for a purpose.
Are we afraid? Of course we are scared, but we trust God wholeheartedly and we trust His proddings and nudgings. We trust in His plan for our lives. Does this mean God will give us a healthy, living baby next? I have no idea. It is completely possible for God to call me to try again and then for me to step out in faith, get pregnant and lose the baby. God is God and I am not. I don’t always understand His decisions. But now, more than ever in my life, I trust Him and I feel excited about what He has waiting for me in my future. And who am I to limit God to a certain number of miracles in my life? If He calls me out upon the water, I will follow just like always. And I know the steadfast love of the Lord never ceases. His mercies never come to an end and neither do His miracles.
Job 5:8-11 As for me, I would seek God, and to God would I commit my cause, who does great things and unsearchable, marvelous things without number: He gives rain on the earth and sends waters on the fields; He sets on high those who are lowly, and those who mourn are lifted to safety.
Yes, Lord, lift us to safety. Bring us this one last baby you have placed in our hearts, and place him in our arms. Continue to do unsearchable, marvelous things in our lives.
So, the logistics… we know in some ways it will be harder to go through such a high risk pregnancy again because we now have three children to take care of during all the treatments, appointments, procedures and sickness. We asked the boys a few months ago if they were willing to go through all of that again for another baby in the family…our last little brother or sister. We reminded them that Mommy would be very sick and would be gone to appointments a lot. We reminded them that the baby could die just like Lucy or the baby could live just like Nora, but we don’t know which it will be yet. We told them that Mommy might have to move to Houston for a few months and we would miss each other so much. If they had not been on board with the idea we would have reconsidered because they will have to make sacrifices for this next baby to get here safely, and they will take the risk of having their little hearts shattered again. Josh and I were surprised at how quickly both boys jumped up and down and shouted “Yes!” and “Please have another baby Mommy!” and they were on board with all of it. Asher even begged for me to have two or three more babies and I told him is wasn’t happening, but maybe we could try for one more. Our families are supportive and willing to help us through the pregnancy again, which we are so incredibly thankful for. We couldn’t have made it through our last pregnancy without them. My mom even said she would be willing to move to Houston again if we had to. We have an amazing, supportive church family and sweet friends who are encouraging and helpful too, so we feel as ready as we ever will be.
We met with a new MFM in Atlanta who was actually trained by Dr. Moise. His name is Dr. Thomas Trevett and he is experienced with isoimmunization/alloimmunization. He even won an award for the work he did developing the use of phenobarbital at the end of the pregnancy to help babies with HDN avoid blood transfusions and high bilirubin after birth. I took phenobarbital the last ten days of my pregnancy with Nora and I truly believe it is one of the reasons why she didn’t struggle with bilirubin after she was born and didn’t have to stay in the NICU. Josh and I met with Dr. Trevett at the beginning of January for a preconception appointment to discuss a future pregnancy and to see if he was even willing to take me on. My case is risky and the treatments will be pretty extreme so I would totally understand if an MFM was hesitant to accept me as a patient. He was so great. He understood everything about anti-kell antibodies and he follows Dr Moise’s protocols already. His course of treatment for me was the same one I had decided on already and very similar to what we did to save Nora. Dr. Trevett and I decided to start the treatments a little earlier than we did with Nora. During my pregnancy with Nora we had to struggle with the insurance company for a while to get them to cover the plasmapheresis and IVIG so the treatments were started a week or two later than I would have liked. I started plasmapheresis at 11 weeks and IVIG at 12 weeks in my last pregnancy and Dr Trevett will start them a week or two earlier with my next pregnancy, just to be extra proactive. Dr. Moise and Dr. Trevett have agreed to collaborate together for my care, which I appreciate so much. If the baby needs an early IUT before 20 weeks I will go to Houston to be treated by Dr. Moise, who has more experience doing early IUTs. If the baby doesn’t need an IUT until later in the pregnancy Dr Trevett will do the IUTs. The main reason we are using both doctors is because Atlanta is about a four hour drive from us and Houston is about an eleven hour drive. It would be much easier for me to take care of my three kids if I didn’t have to relocate to Houston for the whole pregnancy. We are still praying that God would give us a kell negative baby so that the baby could be safe from my antibodies. Supposedly, each baby of ours has a 50% chance of being kell positive or kell negative. BUT we know for sure that Asher, Lucy and Nora are all kell positive and Liam might be, so for some reason Josh’s genes seem to dominate. Maybe this will finally be our kell negative baby?
Please join us in praying for our future baby, that (s)he would be kell negative and would be born healthy. Please pray that Nora would get to be a big sister and have a sibling close in age. She would LOVE to have a real baby to take care of and boss around!
I am excited for you all, dear friend! You are so strong and so brave and such a light to others. I trust in God’s plan for your family. I know you listen carefully to what He puts in your heart. Lord, please be with this family on the newest. journey.
Thank you Sara! You are my best supporter and encourager, seriously. God is going to have a great reward waiting for you in heaven (not as great as Luke but still awesome) just because of all the encouragement and hope you have infused into my life. Thank you friend!
I’m still following along on your blog, from up here in Canada. Feels like life’s circumstances have hit us in similar ways. After 3 Kell-positve children (second mildly, third severely affected), I read your blog, and decided to visit my MFM to see what she would advise. With her positive outlook and newer advances in procedures, similar to yours, we went into pregnancy #4. After many complications with trying to find out baby’s blood type, we found out our little girl was K-negative! Sadly, at 30 weeks, she died from unrelated causes and was stillborn. God saw fit to send us another K-negative baby girl one year later. She’s my four month old miracle now. Seeing her growing brings many emotions, though, as I realize how much I have missed seeing my angel grow up. But God is very good and gives much more than we can imagine. Thanks for the courage you have given to me, and I wish you courage in your journey, hoping you will get your K-negative or at least “take-home” baby!
Wow, Lisa I am so sorry for your loss! What an incredible heartache to endure, especially after the hope of finding out baby was kell negative. I remember towards the end of my pregnancy with Nora, after all the intervention she had survived, even when doctors declared her “out of the woods” I always had an uneasy feeling just because I knew how many babies are stillborn from completely unrelated issues. I’m so sorry that happened to your daughter and to your family. How amazing that God sent you another kell negative girl a year later though! Your story is inspiring and I admire your courage so much. Thank you for sharing ❤
Even if we don’t understand the Why sometimes, God does have a plan and knows but He also says to ask him.