I know how hard it is to find information on this topic when you are searching for it on the internet. Here are some helpful resources and links to help you learn more about Anti-Kell Antibodies (and other antibodies) during pregnancy and HDFN:
- This is a brochure recently completed by the staff at Children’s Memorial Hermann Hospital based on questions from patients. This is where Dr. Moise works and it is where Nora was treated and born (healthy!) v10-10764-1-childrens-hemolytic-disease-6-panel-brochure-4409422-7-pages-1
- Diagnosing and managing fetal anemia Society for Maternal-Fetal Medicine (SMFM) Clinical Guideline #8- The fetus at risk for anemiaediagnosis and management
- On the usefulness and importance of MCA scans: Usefulness of MCA Scans
- Important guidelines on follow up care after baby is born (for women who had IUTs.) I printed this off and took it to our pediatric hematologist after Nora and Callum were discharged from the hospital: Dr. Moise Post-Natal Management of Red Cell Alloimmunization Following IUT08182014
- A woman in the Iso Moms facebook group has been working very hard to collect tons of information on antibodies during pregnancy and has finally got her website up and running. Here is where you can find some very helpful information, links to important studies and even printables: www.allaboutantibodies.com
- Postponing Early IUT with IVIG: Petitstudy
- Treating Severe Alloimmunization with Plasmapheresis and IVIG: PlasmapheresNAIT
- This is my favorite MCA-PSV calculator you can use when you have an MCA scan. The MFM will determine the PSV number during the scan and you can plug it into the calculator to find out what baby’s MoM is: http://medicinafetalbarcelona.org/calc/
- This is another MCA-PSV calculator that is often used, but it doesn’t calculate MoMs earlier than 18 weeks so I usually don’t use it much (but it is still a good resource) http://www.perinatology.com/calculators/MCA.htm
- This blog post has all the instructions and forms you need to find out whether your baby is kell positive or kell negative: Anti-Kell Antibodies: Is My Baby Kell Positive or Kell Negative?
I will add more links later when I have time. At the moment Nora is babbling in her crib and ready to get up from her nap so this is all I have time for today!