I am so happy to be able to update this page with some amazing resources we’ve been working very hard on over at The Allo Hope Foundation. Check out our website: www.allohopefoundation.org
- To join our support group with over 1,200 alloimmunized patients in it: Antibodies in Pregnancy: An AHF Support Group
- To order free informational prenatal and newborn HDFN patient booklets: https://allohopefoundation.org/library/booklets/
- To listen to The Allo Podcast: https://podcast.allohopefoundation.org/
- This is a brochure by the staff at Children’s Memorial Hermann Hospital based on questions from patients. This is where Dr. Moise used to work and it is where Nora was treated and born (healthy!) v10-10764-1-childrens-hemolytic-disease-6-panel-brochure-4409422-7-pages-1
- Diagnosing and managing fetal anemia Society for Maternal-Fetal Medicine (SMFM) Clinical Guideline #8- The fetus at risk for anemiaediagnosis and management
- Learn about HDFN and a new possible treatment: https://www.jnj.com/innovation/about-hemolytic-disease-of-fetus-and-newborn
- On the usefulness and importance of MCA scans: Usefulness of MCA Scans
- Important guidelines on follow up care after baby is born (for women who had IUTs.) I printed this off and took it to our pediatric hematologist after Nora and Callum were discharged from the hospital: Dr. Moise Post-Natal Management of Red Cell Alloimmunization Following IUT08182014
- You can find some very helpful information, links to important studies and even printables here: www.allaboutantibodies.com
- Postponing Early IUT with IVIG: Petitstudy
- Treating Severe Alloimmunization with Plasmapheresis and IVIG: PlasmapheresNAIT
- This is my favorite MCA-PSV calculator you can use when you have an MCA scan. The MFM will determine the PSV number during the scan and you can plug it into the calculator to find out what baby’s MoM is: http://medicinafetalbarcelona.org/calc/
- This is another MCA-PSV calculator that is often used, but it doesn’t calculate MoMs earlier than 18 weeks so I usually don’t use it much (but it is still a good resource) http://www.perinatology.com/calculators/MCA.htm
- This blog post has all the instructions and forms you need to find out whether your baby is kell positive or kell negative: Anti-Kell Antibodies: Is My Baby Kell Positive or Kell Negative?