Callum’s Birth Story

Isaiah 41:17-20 When the poor and needy seek water, and there is none, and their tongue is parched with thirst, I the Lord will answer them; I the God of Israel will not forsake them. I will open rivers on the bare heights, and fountains in the midst of the valleys. I will make the wilderness a pool of water, and the dry land springs of water. I will put in the wilderness the cedar, the acacia, the myrtle, and the olive. I will set in the desert the cypress, the plane and the pine together, that they may see and know, may consider and understand together, that the hand of the Lord has done this, the Holy One of Israel has created it.

A tree is just a tree unless it grows in a wasteland, then it becomes something quite miraculous; a sign of something greater, someone greater. I believe that every life is a miracle, but sometimes it takes an impossible situation to see the Hand behind it. My wasteland of a womb was supposed to be uninhabitable for human life, but Callum grew and flourished there in the desert. Let us all see and know, let us consider and understand together that the hand of the Lord has done this, the Holy One of Israel has created him.

Well, Callum’s birth story is not what I was expecting at all, but it’s not my birth story is it? It’s his birth story and he definitely made it his own. I was scheduled to have Callum’s fourth and last intrauterine blood transfusion on Wednesday, September 13th. This meant that I had to be at the hospital early on Monday the 11th to have my blood drawn. They always drew my blood a couple days before the IUT to make sure the donor blood matched my antibodies. I left at around 2 am that Monday morning for Atlanta and prayed that I would beat hurricane Irma there. Well, it was a tropical storm by that point but I still did not want to be caught in the storm on the interstate. I barely gave any thought to what I packed, expecting to only be there for three nights at the most. Oh, how I wish I had packed for a birth and for weeks of post partum life, breastfeeding and a long stay in the Ronald McDonald House! At least I grabbed Cal’s diaper bag at the last minute. I got to the hospital that morning and everything felt a bit weird and tense. All the schools were closed because of the storm and Dr. Trevett’s office was closing at 12:00. I was scared that the blood bank would have trouble getting the blood in time if the storm was really bad. I also worried that something would happen and Dr. Trevett wouldn’t be able to make it to the hospital Wednesday morning for the IUT.

Dr. Trevett did an ultrasound to check on Callum and he seemed really subdued compared to his normal active self. His MoM was 1.85 but Dr. Trevett didn’t see any signs of hydrops or distress. MCA scans aren’t usually accurate anyway after the second IUT because the baby’s blood is actually adult donor blood, which flows differently. Dr. Trevett thought Callum would be fine until the transfusion on Wednesday.

I drove to our friends’ house and you guys, there were no cars on the interstate, in Atlanta, in the middle of a weekday. I felt like I was on the Walking Dead. Super eerie. A couple hours after I arrived at their house the power went out and didn’t come back on for days.

I realized then that I hadn’t been feeling Callum move very much. Dr. Trevett had told me earlier that day that if Callum slowed down at all I should come in and they would keep me on the monitors until the IUT. I debated whether I should go in or not. I really didn’t want to get out on the roads in the storm so I checked Cal’s heartbeat with my doppler and it sounded normal. He was moving every now and then, but his movements were way more inconsistent and sluggish than usual. We played board games by candlelight and ate curry that night, which was fun, but I worried and monitored Callum’s movements, going back and forth about whether I should go in or not. It seemed like every time I decided to go in for monitoring, he would kick and I would change my mind. I was also having pretty regular contractions but ignored them since that is normal for me, especially in the third trimester.

That night I hardly slept because I barely felt my boy move. The next day my contractions picked up and I started timing them. They were coming consistently, every six minutes. I still didn’t go in because Callum was moving just enough to keep me from panicking and the contractions never got closer than six minutes apart. Wednesday morning I got up in the pitch black that is 4 am with no electricity and got ready in the darkness. I loaded the car up using my phone flashlight to see and drove to the hospital through the dark streets that were usually lit by street lights. Lots of trees and branches were down and traffic lights were out. The brightly lit hospital was such a relief when I got there. Dr. Trevett was there ready for the transfusion (he always made my heart feel steady) and the blood was being checked in. It was the one and only time I went in for an IUT all by myself. My husband Josh had to work and my mom was keeping Nora and my boys back in Alabama and I had insisted that I would be ok by myself.

I changed into the hospital gown and got hooked up to the monitors and waited for Dr. Trevett to get the OR ready for the procedure. The monitors picked up my contractions right away. I noticed pretty quickly that the baby’s heart rate seemed to be slowing down a lot after my contractions. After one especially big dip, the nurse came rushing in and told me to lay on my side while she paged Dr. Trevett. Her voice sounded urgent and he was there calling for an ultrasound before I knew it. They brought in a portable ultrasound machine and Dr. Trevett scanned Callum looking for signs of distress or hydrops. He said everything looked fine and Callum even passed the biophysical profile almost right away. Dr. Trevett decided to watch the baby’s heart rate for a few minutes and then he would decide what to do. He told me that the baby might have to be delivered if he was showing more signs of distress. I couldn’t believe they were seriously considering delivery. I was only 34 weeks and I was all alone and I just was not prepared to give birth right then. I woke Josh up with a text saying the baby MIGHT possibly be born that day and for him to start packing a bag just in case. Right then I had a hard contraction and as the contraction eased, Callum’s heart rate just plummeted. Dr. Trevett and the nurse both came running in and Dr. Trevett said the baby was coming out. He explained that Callum was definitely showing signs of distress and was telling us that he needed to be born as soon as possible. The IUT procedure does come with risks and it would be really unwise to do an IUT on a baby who was already in distress. If he did, chances were high that Callum would have to be delivered by crash c-section and would not be in good shape. I asked if I could be induced but he said that there was no way Callum would be able to handle the whole labor and delivery process if he wasn’t even handling these contractions well. Induction would also most likely end with a crash c-section. Thankfully my OB, Dr. Howard, was the doctor on call that morning so he was paged. I quickly got one last picture of my pregnant belly. My last bump picture ever.

The anesthesiologist was there before I knew it inserting my epidural. I felt REALLY floaty after that but still needed to send out a few texts to family and my best friend to let them know what was happening. It felt like my fingers were in wet cement and it felt like a tremendous effort to type out each letter. My texts were hilariously short and to the point. My friend Shelly was completely caught off guard by this text I sent her-


I was a little scared and I was really sad that Josh couldn’t be there for the birth (it’s about a four hour drive) but overall I felt a deep sense of peace and excitement going into that operating room. You know that Christmas Eve feeling from childhood when you know you are so close to opening your presents? That intense sense of anticipation and joy…that’s how I have felt right before each of my babies was born, besides Lucy of course. Even though Callum’s birth was very different from the births of my other four children, that magical sense of joy and excitement was still there. One of the nurses took pictures with my phone for me and the c-section was completely painless. I still was in shock that they were delivering my baby right then! They asked if I wanted to watch him being born (blood doesn’t bother me at all) and I said absolutely!

*WARNING- Semi-graphic pictures ahead*

They lowered the curtain between me and the doctors and then they pulled my miracle baby out and he was beautiful!

I was flooded with gratitude and relief to know my baby was alive and out of my body. Even though it was my body that had grown and nourished my son for months, it was also my own body that had worked so hard to destroy him. It felt amazing to finally get him out of there! It took a little while for Callum to cry but he finally did and it felt really unnatural for him to not be on my chest where I could comfort him. I couldn’t even see him.

They worked on him for a few minutes getting him stabilized, and they drew blood to see if he needed a blood transfusion. His apgars were 8 and 9 which was better than I had expected. He had some trouble breathing so they put him on a CPAP machine to help him breathe.

I finally got to see my son and he was perfect. Callum Joseph Thomas, born at 34 weeks 4 days, weighed 6lbs 6oz and was 18.5 inches long.

They whisked him off to the NICU and then I was alone with no baby and no husband, which was really weird. But the peace and the joy of having a living baby still lingered like a warm scent. They took me to the recovery area and that was kind of emotional for me. All the women who were brought to recovery had their babies with them and their husbands were there too. The babies cried and everyone congratulated each other and I laid there all alone in the corner wondering what was happening to my baby. A doctor came to update me on how Callum was doing. His hematocrit was 18, hemoglobin was 6 and cord bilirubin was 5. This meant that he was very anemic and his bilirubin was very high, which is what we were kind of expecting. They immediately put him on phototherapy lights, started an infusion of IVIG and started his blood transfusion. They were able to use the blood they had prepared for the IUT for Callum’s blood transfusion. I’m so glad the doctor took an aggressive approach treating Callum’s HDN (hemolytic disease of the newborn) because it prevented the need for an exchange transfusion and they were able to keep Callum’s bilirubin below brain damage levels.

Three of Dr. Trevett’s nurses came up to see me, which was so sweet and encouraging. They had all worked so hard to help get Callum here alive and I appreciate each one of them so much. They congratulated me and asked how he was doing. It was nice to finally have visitors and to be congratulated on my new baby like the other women in recovery (even if it wasn’t my husband or family members.) I cannot praise Georgia Perinatal Consultants enough for the amazing care they provided during my pregnancy. They went out of their way to make sure I was comfortable and Callum was safe. I often had to schedule ultrasounds last minute duringmy pregnancyand I was only willing to see Dr. Trevett but they always worked me in. If you are pregnant and dealing with isoimmunization and are in Georgia, Alabama or surrounding areas, I strongly recommend using Dr. Trevett at Georgia Perinatal Consultants. Anyway, I was finally taken to my room after that and I got settled in. The nurse told me that my epidural would stay in and I wasn’t allowed to eat or get out of bed for 12 hours post surgery. This meant that I wasn’t allowed to go see my new baby for 12 hours after birth. Of all the 19 days that Callum was in the NICU, those first 12 hours apart from him were by far the hardest emotionally. My whole being ached to hold him and be with him. It vaguely reminded me of when Lucy was born and she was taken away and I was left absolutely empty in that hospital bed. Except this time my heart was full of joy and gratitude and everyone who walked in the room congratulated me. Iknew my separation from Callum was temporary but I still ached for him. One of the nurses brought me a picture of Callum in the NICU and I clung to that picture and looked at it constantly. It was such a comfort to me.

Josh finally arrived and we tried to decide whether he should go see Callum in the NICU or wait until I could see him and both go meet him together. I really wanted to see the look on Josh’s face when he saw his son for the first time, but in the end he just couldn’t wait. He wanted to meet his boy and I wanted him to check on Callum so he went down to the NICU without me and met his son. I will always mourn the fact that I didn’t get to watch Josh meet his son for the first time. He came back to my room gushing about Callum and we marveled that our baby was here alive. I watched the clock and counted down the minutes until I was finally allowed to get out of bed and go see my baby boy. Josh wheeled me down to the NICU late that night and I finally got a closer look at my beautiful little Callum.

Despite being almost 6 weeks early and being hooked up to breathing support and lots of different monitors, IVIG, etc. Callum looked healthy and perfect and I was filled with awe. Over the following days our family members trickled in from Alabama, Tennessee and South Carolina to meet our miracle boy who they all had been praying for for months. Callum had three rounds of IVIG, two days on CPAP, several days of phototherapy lights, and two blood transfusions before being released from the NICU 19 days after he was born.

img_7487

Dr. Trevett holding his namesake on discharge day

 

We brought Callum home from the hospital on October 2nd, about three weeks before his due date. He had one more blood transfusion at about six weeks old and was released from hematology at two and a half months. He is perfectly healthy with no lingering effects from the antibodies that tried to kill him in the womb. His brothers and his sister are obsessed with him and he has brought so much joy to our family.

img_4749

In 2013 after we lost Lucy we went on to lose our two “rainbow babies” in early miscarriages; Jude in July and Pax in October. We named our third lost baby Pax because it meant “peace” and we were trusting God to fill us with peace even in our pain and devastation. I realized when I brought Callum home from Atlanta that in the end, I brought home my two living rainbow babies in July (Nora in 2015) and October (Callum in 2017), the same two months we lost Jude and Pax. I also realized that Callum’s name means “peace” just like Pax. God redeemed so much pain with these two miracle babies I got to bring home from the hospital. As I was finishing up this blog post today I decided to look back in my journal from October of 2013 when I lost my third baby in eight months and I found on that page, the exact verses that I started this blog post with, Isaiah 41:17-20. I praise God for writing such a remarkable story for my life and for using our pain and suffering to create something beautiful. I encourage those of you who are still waiting for your miracle and for your redemption not to give up hope. Keep clinging to hope, keep waiting in faith. God will give you the strength to continue and one day you will have your own story of healing and redemption to share with others.

Isaiah 40:31 Yet those who wait for the Lord will gain new strength; They will mount up with wings like eagles, they will run and not get tired, they will walk and not become weary.

Thank you, God, for our Callum Joseph Thomas and for the many amazing people who had a hand in bringing him here safely. He is our tangible reminder of your love and your faithfulness.

img_6796

Advertisements

All Clear

Well, we went in for Callum’s seventh blood transfusion on the Friday before Thanksgiving and ended up leaving the hospital without one! When we arrived that morning for the transfusion they inserted his IV and had his blood drawn to check his levels and we were happy to find out that his levels had gone up just a little bit on their own! His hematocrit and hemoglobin the Monday before had been 25.7 and 9.1 and on Friday they were 26.6 and 9.3. It was the first time in his life that he had brought his counts up without a blood transfusion so we were elated.

His hematologist checked his blood for my antibodies and it came back completely negative! I was surprised by how emotional I felt when he told me Callum’s antibody screen was negative. My baby was finally free from my dangerous antibodies for the first time in his life. He can now make his own blood and it won’t ever be destroyed by my antibodies again. It has been a long hard road to get my boy to safety. We did it! They removed his IV and sent us home without a transfusion.

We came back a few days later to check his counts one more time right before Thanksgiving and his numbers had BARELY gone up. His hemoglobin was the same (9.3) but his hematocrit had gone up from 26.6 to 27 so we were cleared to leave the state and visit family in South Carolina for Thanksgiving. We had such a great Thanksgiving with everybody. Callum’s Grandparents got to hold him for the first time and his SC aunts and uncles got to hold him for the first time without monitors and wires attached to him.

Yesterday I drove the hour to Children’s of Alabama for the last time to have Callum’s blood checked by the hematologist. His levels had gone up again on their own! His hematocrit was up from 27 to 28.4 and his hemoglobin was up from 9.3 to 9.6. We were officially released from hematology and we never have to check his counts again!! Thank you God, for this amazing gift.

Driving home from the hospital for the last time with my healthy boy in his car seat was redemptive and beautiful but bittersweet. This is how Lucy’s story should have ended. If she had been given the right monitoring and treatment like Nora and Callum, then I would have driven home one day in 2013 with my healthy baby girl in her car seat and our lives would have been completely different. Our family would be intact, our hearts would not be irreparably broken. Nora would grow up with a sister. Liam and Asher’s childhoods would not be marred by this tragedy. So many shoulds and woulds, and though I rejoiced that we were done, my grief noose tightened just a bit as I drove home with my healthy rainbow boy. But I also think about the other babies who might not be alive if it weren’t for Lucy and this blog. How many other lives would be devastated by tragedy if Lucy had lived? I’m reminded of a song I heard one day while driving to Atlanta for an ultrasound. It’s by Judah and the Lion and the lyrics bring me to tears every time I hear it.

And I’d take it all back, take it all back, take it all back just to have you.

Just typing the words makes me tear up. The words surge all the way down into this deep part of my soul, the part that still desperately wants to save my daughter. I think about the question, “Would I take it all back just to have my baby Lucy?” My mother heart would do anything to have my daughter back, to keep her alive. I would take it all back just to have her. But I also know that I couldn’t possibly make that choice knowing now what her life and her death have meant for other families. I am comforted knowing that God is in control of every little detail of my life and Lucy’s life and I don’t have to make these impossible, hypothetical decisions. But I still feel a deep ache knowing that Lucy’s story could have ended like Callum’s and the treatment that could have saved her was out there all along. Even with such angst in my heart about what happened to Lucy, I am flooded with relief and joy and gratitude knowing that Callum’s story will end differently.

Two Months and Still Fighting

Our baby Callum is two months old today! He is such a sweet boy. His favorite things are cuddling, sleeping in our arms, Mommy’s milk and Daddy’s voice. He really doesn’t like loud noises, lying flat on his back, bright lights and baths. He is smiling now and holding his head up (but still a little wobbly.) His siblings are obsessed with him (and his parents are too😉)

Callum is allergic to dairy, soy and wheat/gluten so I’ve cut all of those foods out of my diet so I can continue to breastfeed him. It’s a lot of work but definitely worth it. Callum is still fighting the anti-Kell antibodies that tried to kill him in the womb. We did blood work ten days ago and his hematocrit was 31. Today I was discouraged to find out that his numbers had dropped again. His hematocrit was 25 and hemoglobin was 9. His retic was 2 so we know that his body is trying to produce its own blood but the anti-Kell antibodies that remain in his system are destroying the new blood he makes. It’s hard to know when to transfuse and when to hold off on the transfusion. In utero Callum’s need for blood was being met by the transfusions Dr Trevett gave him. This sent the signal to his body that it didn’t need to keep producing red blood cells, so it stopped. Now we need his body to start making blood again but the only way to send that signal is to let him get anemic. We can’t let him get too anemic or he could suffer permanent damage to certain organs or could even die, but if we don’t let him get anemic enough his body will never get the signal that it is now responsible for producing red blood cells. Anyway, Callum has been looking a little pale and has been fussier than usual. Even though he is definitely anemic we are holding off on the transfusion and retesting his blood on Friday. In the meantime I’m supposed to monitor Callum closely and make sure he isn’t having trouble eating or breathing, and if he is I’m supposed to take him to the ER immediately. Whew, it is a lot. We are so sleep deprived because Callum has severe reflux (common with preemies) and he can’t ever lay flat to sleep. Even when he is slightly reclined he is uncomfortable, so that has been hard. I have a stack of birth announcements and thank you cards that still need to be sent out and my blog post about Cal’s birth story is only partially written. My house is an absolute disaster and my kids have had WAY too much screen time (I even let Nora get addicted to those mind numbing YouTube videos where people open Peppa Pig/Shopkins/Mickey Mouse/Paw Patrol toys and count gum balls.) But Callum’s needs are immediate so here I am on the couch holding him upright for an hour after I feed him and watching to make sure he is breathing ok. Everything else can wait.

Two things that are saving my sanity right now:

My Tula carrier that keeps Callum upright and leaves my hands free to do other fun things like dishes, cooking, laundry, two year old diaper changes, etc.

And our Owlet Smart Sock that monitors Callum’s heart rate and oxygen levels. An alarm will go off if his levels are too low or too high and all the info is sent to our phones so we can check his levels at any time.

This is one is too cute not to share. “Callum Weathersby is wiggling”

We have a lot of peace knowing that his heart rate and oxygen levels are constantly being tracked while he sleeps. We actually had heard about the Owlet sock long before Callum was born and really wanted one for him but couldn’t afford it. One day I came across a foundation called Knox Blocks which provides Owlet socks to families who can’t afford to buy them. I submitted a request for one and told them a brief recap of Callum’s story but didn’t really think anything would come of it. One day when Callum was still in the NICU I got an email from them telling me we had been chosen to receive an Owlet sock for Callum! We are so thankful for this gift, especially now while he is anemic. His oxygen levels and heart rate are good indicators of how his body is handling the anemia. I doubt I would sleep at all if it weren’t for this monitoring system. Thank you Knox Blocks, Palmer family and especially, baby Knox💙

Please continue to pray for Callum’s blood levels to normalize and for all of this to be over soon. Thank you!

P.S. I fell asleep several times while writing this so I apologize for any mistakes.

ISO Moms From Europe

I need your help! If you are from the UK, Germany, France, Italy or Spain and have had a pregnancy with HDFN (hemolytic disease of the fetus and newborn/isoimmunization) which included an intrauterine blood transfusion, you are needed for a research study. Your story could possibly help protect babies in the future and prevent other parents from going through what you went through (and you can make a little extra money while doing it.) A research study is being done on a new treatment for HDFN and they need women from Europe who are willing to do an hour long interview about their experience with antibodies during pregnancy. They will pay you $100 for your time. Here is a little more information about it from Ms. Benson-

We invite you to take part in a confidential 60 minute phone interview to discuss your experience with HDFN (Hemolytic Disease of the fetus and Newborn). We offer $100.00 for your time on the phone. We are working on behalf of a pharmaceutical manufacturer who is exploring the development of new treatment options to treat women affected by HDFN. The company is interested in understanding the experiences of mother’s affected by HDFN in order to help them better understand patient needs so they can work to develop the best treatment possible for this disease of high unmet need.

The central objective for these qualitative interviews is to explore the patient journey for patients with a history of HDFN including:

· How you received your diagnosis

· What types of treatments you received

· What types of treatments your baby received

· How HFDN has impacted your life

· Your thoughts on a new product in development to treat HDFN

bioStrategies Group is a consulting firm specializing in helping clients develop and commercialize innovative technologies to better serve patients, physicians and the healthcare system. Our clients include major pharmaceutical, diagnostic and biotechnology companies 

I did the interview already and it went great. The treatment sounds amazing. If you would like to participate please email me, Bethany Weathersby at bethanysk55@yahoo.com or Julie Benson at benson@biostrategies.com

Transfusion #6

Today is our baby Callum’s due date! It is hard to believe he is almost six weeks old on his due date.


Yesterday, Callum had his sixth blood transfusion (third post birth transfusion.) His hematocrit had held steady at about 29 the past few weeks but this week it suddenly dropped to 23. He wasn’t eating well and was more irritable than usual so his hematologist and I thought it was best to go ahead and transfuse. The doctors and nurses at Children’s of Alabama have been so wonderful, just like they were with Nora a couple years ago. They called IV therapy to insert Callum’s IV since he is so tiny and they hit his vein on the first try. They also had to double check his blood type since it had changed since birth. He was born O- because he was 100% donor blood at birth, but since then he has started making his own blood so yesterday when they tested him again, his blood type was O+. During the blood transfusion I was able to breastfeed Callum (some hospitals don’t allow baby to eat at all until the transfusion is finished) and I had a comfortable recliner to sit and hold him in the whole time. He handled it really well and slept in my arms or nursed throughout the transfusion. I think he was just happy to have a whole day of Mommy’s complete attention for once.

We will do blood work again in about two weeks to see how Callum is doing. They tested Callum’s blood yesterday to see if he still had some of my antibodies circulating in his system and he does, which means the new kell positive blood he is making now will be attacked by my antibodies. Hopefully soon he will be antibody free and he will be making all of his own blood with no further need for transfusions (like Nora.) Ok, I can barely keep my eyes open so I’m off to bed!

His Name

Several people have asked us how we came up with the name Callum and others have asked why he has two middle names. Josh and I really struggled to come up with Callum’s name since we had already named seven babies before him (Liam Joshua, Asher Caleb, Lucy Dair, Jude, Pax, Scarlet Mae and Nora Juliet.) We are thankful that we found the perfect name for him and we won’t be naming any more babies after this!

Callum is pronounced “Cal” like in California and “um” like in umbrella. We have been surprised to hear lots of variations on the pronunciation (I guess since most people haven’t heard the name much.) We’ve heard “Caylum” and “Collum” a lot. The name Callum is Scottish, and it means “Peace/Dove.” God truly has brought us so much peace through this boy and He blessed me with a supernatural peace throughout my stressful pregnancy. Even while being wheeled into the operating room for a completely unexpected c-section all by myself with a premature baby who was showing signs of distress, I felt overcome by peace and excitement. I pray that in this world of suffering and chaos, Callum will know the deep, resounding peace of Jesus. I pray that God uses Callum’s life to bring peace and comfort to others.

Callum’s middle name, Joseph, means “God has added” which is so perfect. We never thought we would have any more babies after Lucy died, then we were blessed with Nora and even though we wanted more than three kids, we thought we had to stop after having our rainbow baby. God has added yet another beautiful little person to our family and we are amazed at His goodness to us. God has added, He hasn’t replaced Lucy or taken away our grief, but He has added joy, peace and fulfillment to all of our loss through this sweet boy. Joseph is also Dr. Moise’s middle name and we know that Callum wouldn’t be here if it weren’t for Dr. Moise. Dr. Moise pioneered the use of plasmapheresis and IVIG for women with extreme alloimmunization during pregnancy (like me.) Callum would not have survived without plasmapheresis and IVIG treatments that kept him alive while he grew big enough for intrauterine blood transfusions. Dr. Moise also helped train Dr. Trevett and is part of the reason why Dr. Trevett is such an amazing physician. Dr. Moise collaborated with Dr. Trevett (all the way from Houston) for my care during my pregnancy with Callum and we are so grateful for his help.

Callum’s other middle name, Thomas, is after Dr. Thomas Trevett, who worked so hard to get Callum here alive.

It is rare to find a physician who is not only skilled at what he does but is also humble, generous and compassionate like Dr. Trevett. He always treated me with kindness and respect, even when I questioned him or when my anxiety bordered on controlling. Dr. Trevett was so cautious with our son’s life. He protected Callum when he was in his most vulnerable and helpless state, and for that we will forever be grateful. I would love for Callum to grow up to be a great man like Dr. Trevett.

A few people have mentioned to us that Dr. Moise and Dr. Trevett probably feel honored to have a baby named after them, but really we are the ones who feel honored to have these men in our lives. We feel honored that Dr. Trevett and Dr. Moise played such an important part in the life of our son and Callum gets to grow up admiring them.

So, that is how our Callum Joseph Thomas was named and he has a lot to live up to and we have so much to be thankful for.

img_4413-1

HOME!

img_4164

We brought our beautiful healthy boy home from the NICU a few days ago and it has been an amazing, exhausting whirlwind ever since. Callum’s doctor did a couple more x-rays and lots of blood work after his bloody diaper and all of it came back clear so she was able to rule out the transfusion related gut injury/NEC that we had feared. He has a dairy allergy instead so I’ve cut out all dairy from my diet and he’s on a dairy free formula (with occasional breastfeeding) until all of the dairy is out of my system (it usually takes a few weeks.) Then we will transition back to breastfeeding only. After Cal had his second post birth blood transfusion his oxygen was so much better (no more desats) and he basically took all of his feedings by mouth from that point on. It felt unreal when they told me I could take him home. I showed up at the NICU to get him and his tiny little body was completely wire free for the first time since he was born!

img_4181

The hospital has a rule that all babies being discharged from the NICU must be wheeled out of the hospital in their mother’s arms, which felt kind of ridiculous since I had been walking back and forth from the Ronald McDonald House to the hospital parking deck to the NICU and back for weeks. It felt so surreal and wonderful though, to be leaving the hospital with my healthy baby boy in my arms.

img_4200

We are overcome with gratitude to God for giving us this miracle and completing our family. Callum was His idea in the first place…a redemptive gift that I do not deserve. I get teary when I think back to the beginning of this year when Josh and I were trying to decide if we were brave enough to try for one last baby and God whispered, “Let me bless you.” over and over again. He encouraged us to be courageous and to trust Him. He had this sweet baby boy in mind and I’m so glad we took that leap. All of the fear and the physical pain and exhaustion and inconvenience was so, so worth it. Watching Nora meet her baby brother for the first time was one of the happiest, most beautiful moments of my life. We grieve the loss of her big sister daily. We ache for the friendship that was lost for Nora when Lucy died. She should have a sister two years older than her. It has been so sad to watch Nora play on the sidelines while her brothers play together every day in their own world that she isn’t really a part of. Josh and I prayed so many times for God to give Nora a sibling friend of her own and now he is here! Callum and Nora are almost exactly the same age distance apart as Liam and Asher and Lucy and Nora. Thank you, Lord, for hearing our pleas and for giving Nora her very own sibling friend.

img_4213

Seeing the relief on Liam and Asher’s faces when they are with Callum is so incredibly gratifying.

img_4226

I’m pretty sure Callum has a different take on things since he is constantly passed around, kissed, patted, hugged and manhandled by his older siblings. I think he longs for his peaceful NICU days of the past.

img_4259

Callum had his first follow up appointment with his pediatric hematologist in Birmingham a couple of days ago and it went really well. He literally slept through his blood draw and his numbers looked ok. His hematocrit was 30 and hemoglobin was 10 and retic had gone up to 1. I really liked his hematologist too. I think Cal will need at least one more blood transfusion before his body is making enough blood on its own, but maybe not. He will have weekly blood draws at the hematologist until he is cleared of his HDN. Thank you all for your support and prayers along the way. We don’t know how we could have done it without you all.