Nora Turns Two and Baby Brother Keeps Fighting

On July 19th our beautiful Nora Juliet turned two years old! Her birthday will always feel miraculous and holy because it is the day God fulfilled so many promises He made to me when I was at my most broken place. It was the day that I did the “impossible”….I gave birth to a healthy, full term kell positive baby girl. God used her to bring light back into our darkness, to heal gaping wounds, to restore hope, to empower women all over the world not to give up. Nora will always be our reminder that God is indeed good, and He does love us. She is our reminder that God places our deepest desires in our hearts for a reason and we do ourselves an injustice if we ignore them, especially when He is calling us to step out in trust. I know that He has great plans for Nora’s life. Thank you, God, for giving me this daughter I can keep. We love her so much and have loved watching her develop and grow over the past two years. We praise you, for you have done gloriously.

Isaiah 12:5 Sing praises to the Lord, for He has done gloriously; let this be made known in all the earth.

Now, a little bit about Nora (because I still marvel that we get to know her on earth and see her personality develop!) Nora is the darkest of our kids- dark brown eyes, darker skin tone and darker hair. As her hair grows longer and longer it gets curlier and curlier and she now has ringlet curls all over her head. She is super maternal and bossy and sweet. She will boss her brothers, her cousins, adults and animals, and I’m sure her baby brother will get it when he arrives too. She wants to take care of everybody. She is independent and loves to drink out of a normal cup, eat with utensils (ALWAYS) and help me unload the dishwasher. She speaks in full sentences and has an amazing vocabulary. At age two her brothers knew all of their letters and numbers but she only knows A, O, S and X. She’s much more interested in relationships than things like numbers or letters. Nora talks and sings constantly and makes up songs about things she’s thinking about or doing. Her favorite place to be is anywhere with people, especially friends and extended family. I think her favorite person on earth is “Manga” (how she says Grandmama) and they have a very sweet, special bond. I sometimes think this is because “Manga” was the one who came to Houston with me and lived in the Ronald McDonald House with us for months. Nora heard Manga’s voice in utero as much as she heard mine and so I think a special bond was formed. Often, Nora wants to go to Manga instead of me when she has he chance. Nora is our daily delight, making us laugh every few minutes. Seeing her with her Daddy is still one of my greatest joys because I ached for so long to see Josh with his own daughter in his arms. Her brothers adore her and I enjoy having a daughter so much. Thank you, God, for this gift.

Nora with her Manga

First train ride

First trip to the beach

Nora at 22 months, me at 22 weeks pregnant.

Exploring Hurricane Creek

Giving Daddy pats

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Baby boy is still doing well but his anemia continues to worsen gradually. His MCA scan this week (27w 2d) was the highest it’s been, at 1.39. Dr. Trevett really thinks next week will be the week that baby needs his first IUT but I’m not so sure. We tentatively scheduled the IUT for Monday but will rescan this Thursday (tomorrow) to see how baby looks. If he’s getting close to the 1.5 cutoff we will plan to have the IUT on Monday. But if baby’s numbers look about the same we will cancel Monday’s IUT. We still can’t believe we’ve made it this far without a transfusion! Baby looked great on ultrasound and is estimated to weigh 2 lbs 11 oz. Here are a few pictures of him from the past couple of weeks:


And here I am at 27 weeks, 4 days pregnant.

We are still struggling to come up with a name for this miracle boy of ours. Most of the names we like are pretty weird (Liam, Asher, Lucy and Nora were all the most “normal” names on our list at the time.) There are a lot of names that we kind of like, but none that we love. Hopefully we will come up with the perfect name soon. We just started getting things ready at home for our boy since we are feeling more confident that we will actually get to bring him home alive. We live in a small, three bedroom house so it is going to be a tight squeeze but we couldn’t be happier to have to fit our FOUR kids into our cozy little house. I never thought we would be able to have four living children! I will do my best to update the blog after my ultrasound (and four hour drive home) tomorrow. Please pray that baby’s numbers aren’t any higher and he gets another week without a transfusion.

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Slightly Anemic

I’m now 25 weeks and 3 days pregnant and the baby is still doing well (poor little guy still doesn’t have a name though!) We are so very grateful to have made it this far without needing an IUT. My next appointment is on Monday when I’m 26 weeks and 2 days. At 26 weeks Nora was having her second intrauterine blood transfusion. Here are baby boy’s MCA scan numbers over the past few weeks:

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You can see that his numbers have gradually increased over the weeks but he is still staying well under the 1.5 cutoff. Right now he is probably slightly anemic but there are no other signs of trouble on his ultrasounds. His heart looks beautiful. Actually, all of his organs look beautiful (such a blessing) and there is no extra fluid anywhere. He is measuring about two weeks ahead and weighs almost 2 pounds. We are thrilled to see our boy do so well and we give God all the praise for this miracle.

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In the past couple of weeks we have finally started explaining to Nora that there is a baby brother in Mommy’s belly and that one day he will come home to stay. This is a huge leap of faith for me because we don’t actually know if he will come home or go to heaven, but lately we’ve been feeling more hopeful than ever that he will survive, so we let the secret out. I’m also HUGE and Nora was starting to wonder what was going on with Mommy’s weird body. I just remember so vividly trying to explain to 2 year old Asher that baby Lucy wasn’t going to come home like we had said and that she had gone to heaven instead. It was terrible and it was so hard for him to wrap his little mind around the concept. I wanted to protect Nora from feeling that loss if her baby brother died so I waited much longer to tell her about the pregnancy than the boys (they knew as soon as I came home with a permacath sticking out of my chest at 10 weeks.) Nora is SO excited about her baby brother and talks about all the things she wants to do with him. In fact, we sat on my bed two nights ago, just Nora and me, having a real heart to heart conversation for the first time. We talked all about the baby and the fun things she would get to do with him once he gets here. It was so special because I felt this sweet connection to my daughter, like we were friends, and it’s something I’ve been looking forward to ever since I found out that I would have a daughter I could keep. Anyway, Nora told me she was going to rock her baby brother, sing to him (she sang me the song she made up for him), put his socks and hat on him, give him milk, give him a bath and when he falls asleep she will shout, “Wake up beebee!” so he can be awake with her (we’ll have to work on that last part.) She also said we should name him “Beebee Callum.” Goodness, she has a lot of ideas and plans for a baby she hasn’t even met yet. With each adorable proclamation of hers my heart trembled and I prayed, “Oh Lord, let it be. Let her hold him and sing her special song to him and even wake him up when hes’ napping, I don’t mind. Please let us experience life with our boy.”

Please continue to pray for our son, that God would strengthen him in this fight for life and protect him from harm. Please pray that Nora will get to be a big sister and meet her baby brother alive one day this fall. I will try to do a better job of updating the blog more frequently. Usually, no news is good news, though!

Another Baby?

 

I have started this blog post and then erased it several times. It’s a sensitive subject, growing your family, adding a baby, especially when you already have three and your pregnancies are extremely high risk. After losing a baby it can feel even more delicate and precarious to discuss pregnancy, child birth, number of children, sibling ages, age gaps and growing your family. Unfortunately many people feel compelled to share their opinions about whether other families should add another baby or stop having babies, especially when it comes to high risk pregnancies or large families. I erased and rewrote this blog post so many times because it is hard to find the right words and to express what is on my heart. We want another baby. We know God wants us to try again. Yes, the next baby could be in a lot of danger in my womb. Yes, we are afraid, but also confident that this is what God wants us to do. I don’t want this post to sound like I’m apologizing for my decision to add another baby to our family. I don’t feel like I have to defend my choice to try again. I don’t owe an explanation to anyone regarding my private decisions about family planning and trying to conceive. BUT, on the other hand, I like being open about this journey. I like sharing my story with all of you and my hope is to be the encouragement that another parent needs when they are struggling with their own family planning decisions. I want others to be inspired not to give up on their dreams of a living child, or a big family or a rainbow baby. I also need your prayers and your support and so I invite you to come on this journey with us to hopefully bring our final baby home.

2016 was the first time I’ve gone an entire year without being pregnant once since 2007. After months and months of prayer we have decided that 2017 is the year that we try for earth baby number four, our last baby. We always wanted at least five children but after developing anti-kell antibodies and losing Lucy we thought that dream was shattered. We mourned the loss of our ability to have more babies as deeply as the loss of our daughter. It was such a sad, hopeless time in our lives. But when Nora was born healthy we realized that we had found the right doctor and the right treatments that worked for us. Even though we can never get our Lucy back on this earth, it was an amazing feeling to realize that our dead dreams of growing our family had been resurrected and maybe, just maybe, we COULD have the big family we always wanted. God has reshaped our hearts and changed our dream of five kids to a dream of four kids. We desperately want Nora to have a sibling friend close in age. We want four kids around the table at Thanksgiving dinner when they are all grown up. We would love for Nora to have a sister on earth, but we know that is up to God. We also know that if we don’t try for this one last baby, we will regret it for the rest of our lives. I knew even while I was pregnant with Nora that I would want one more after her if she survived. I knew God was planting a seed in my heart and growing it for a purpose.

Are we afraid? Of course we are scared, but we trust God wholeheartedly and we trust His proddings and nudgings. We trust in His plan for our lives. Does this mean God will give us a healthy, living baby next? I have no idea. It is completely possible for God to call me to try again and then for me to step out in faith, get pregnant and lose the baby. God is God and I am not. I don’t always understand His decisions. But now, more than ever in my life, I trust Him and I feel excited about what He has waiting for me in my future. And who am I to limit God to a certain number of miracles in my life? If He calls me out upon the water, I will follow just like always. And I know the steadfast love of the Lord never ceases. His mercies never come to an end and neither do His miracles.

Job 5:8-11 As for me, I would seek God, and to God would I commit my cause, who does great things and unsearchable, marvelous things without number: He gives rain on the earth and sends waters on the fields; He sets on high those who are lowly, and those who mourn are lifted to safety.

Yes, Lord, lift us to safety. Bring us this one last baby you have placed in our hearts, and place him in our arms. Continue to do unsearchable, marvelous things in our lives.

So, the logistics… we know in some ways it will be harder to go through such a high risk pregnancy again because we now have three children to take care of during all the treatments, appointments, procedures and sickness. We asked the boys a few months ago if they were willing to go through all of that again for another baby in the family…our last little brother or sister. We reminded them that Mommy would be very sick and would be gone to appointments a lot. We reminded them that the baby could die just like Lucy or the baby could live just like Nora, but we don’t know which it will be yet. We told them that Mommy might have to move to Houston for a few months and we would miss each other so much. If they had not been on board with the idea we would have reconsidered because they will have to make sacrifices for this next baby to get here safely, and they will take the risk of having their little hearts shattered again. Josh and I were surprised at how quickly both boys jumped up and down and shouted “Yes!” and “Please have another baby Mommy!” and they were on board with all of it. Asher even begged for me to have two or three more babies and I told him is wasn’t happening, but maybe we could try for one more. Our families are supportive and willing to help us through the pregnancy again, which we are so incredibly thankful for. We couldn’t have made it through our last pregnancy without them. My mom even said she would be willing to move to Houston again if we had to. We have an amazing, supportive church family and sweet friends who are encouraging and helpful too, so we feel as ready as we ever will be.

We met with a new MFM in Atlanta who was actually trained by Dr. Moise. His name is Dr. Thomas Trevett and he is experienced with isoimmunization/alloimmunization. He even won an award for the work he did developing the use of phenobarbital at the end of the pregnancy to help babies with HDN avoid blood transfusions and high bilirubin after birth. I took phenobarbital the last ten days of my pregnancy with Nora and I truly believe it is one of the reasons why she didn’t struggle with bilirubin after she was born and didn’t have to stay in the NICU. Josh and I met with Dr. Trevett at the beginning of January for a preconception appointment to discuss a future pregnancy and to see if he was even willing to take me on. My case is risky and the treatments will be pretty extreme so I would totally understand if an MFM was hesitant to accept me as a patient. He was so great. He understood everything about anti-kell antibodies and he follows Dr Moise’s protocols already. His course of treatment for me was the same one I had decided on already and very similar to what we did to save Nora. Dr. Trevett and I decided to start the treatments a little earlier than we did with Nora. During my pregnancy with Nora we had to struggle with the insurance company for a while to get them to cover the plasmapheresis and IVIG so the treatments were started a week or two later than I would have liked. I started plasmapheresis at 11 weeks and IVIG at 12 weeks in my last pregnancy and Dr Trevett will start them a week or two earlier with my next pregnancy, just to be extra proactive. Dr. Moise and Dr. Trevett have agreed to collaborate together for my care, which I appreciate so much. If the baby needs an early IUT before 20 weeks I will go to Houston to be treated by Dr. Moise, who has more experience doing early IUTs. If the baby doesn’t need an IUT until later in the pregnancy Dr Trevett will do the IUTs. The main reason we are using both doctors is because Atlanta is about a four hour drive from us and Houston is about an eleven hour drive. It would be much easier for me to take care of my three kids if I didn’t have to relocate to Houston for the whole pregnancy. We are still praying that God would give us a kell negative baby so that the baby could be safe from my antibodies. Supposedly, each baby of ours has a 50% chance of being kell positive or kell negative. BUT we know for sure that Asher, Lucy and Nora are all kell positive and Liam might be, so for some reason Josh’s genes seem to dominate. Maybe this will finally be our kell negative baby?

Please join us in praying for our future baby, that (s)he would be kell negative and would be born healthy. Please pray that Nora would get to be a big sister and have a sibling close in age. She would LOVE to have a real baby to take care of and boss around!

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Treasuring Up All These Things

Luke 2:19 But Mary treasured up all these things and pondered them in her heart.

This verse in Luke is one of my favorite verses in the Bible. Mary had just given birth to her first child and a little while later a group of shepherds came running in, telling her about angels that had just visited them in the fields. The angels were praising Jesus, the same Jesus Mary had just given birth to. What must have been going through her head at that moment?

As 2016 draws to a close I realize that this year has been a year of treasuring up and pondering; like Mary did in her heart when the shepherds came rushing in after Jesus was born. I can only imagine how overwhelmed Mary was after going through labor and delivery, then facing these visitors and their message from God. Sometimes the weight of a moment is too much to take in right then. Sometimes God reveals things to us that we can’t possibly fathom. Sometimes the beauty and wonder of the moment deserves more than the time it’s given. Life is so fleeting. I often wish I could pause time to fully take in the wonder before me, chubby arms and legs, toddler sized proportions in nothing but a diaper, the sweet five year old love ballads to Mommy, the gentle kiss from biggest brother to tiniest sister. Since I can’t stop time I treasure up the moment and soak it in, ponder it in my heart, store it up to take out later and admire. My year has been full of these moments that I want to keep forever. Moments that point back to God and His goodness.

The moment when Mary stopped to treasure up all the things that were happening around her, to ponder the message God was sending her about her child, often reminds me of a day when I did the same but in very different circumstances. February 8th, 2013, the worst day of my life, when my daughter’s heart stopped and my body became a tomb, God made His radical promise to me, “I WILL REDEEM THIS.” I had no energy or clarity of mind to even attempt to grasp what the words meant, so I stored it up for later. Like Mary, who probably could not believe what was happening to her or how the path of her life had suddenly gone a completely different direction than expected, I struggled to take it all in. I was in shock. But God spoke over and over again, an audible voice in my head, “I WILL REDEEM IT.” And each time He spoke I took His promise like a treasure and stored it away to ponder later. Since that day, almost four years ago, I have contemplated the promise many times, turning it over in my mind. God promised to redeem my daughter Lucy’s death and all the loss and pain that came with it. But did He realize how much was lost on that day and all the days since then? That promise of redemption feels too large. It feels impossible. The first year or two after Lucy’s death I reached in and took that promise out in anger, wielding it like a weapon towards God, “You promised me! But you let more tragedy strike instead! Why would you make a promise you could never fulfill?” How could He possibly repay me for my daughter’s death? Over the years God has patiently and carefully crafted my story, moment by moment, using all the loss for good, mending broken places and making the barren wasteland fruitful. And yes, even redeeming parts of my Lucy loss that I thought would never be redeemed on earth.

This year especially I have seen the redemption He promised emerge more than ever. There have been countless moments of glory, beauty and joy that I never thought I would experience again on earth, too many to list here. Many of these moments involved my miracle baby Nora and many of these moments involved other women with high risk pregnancies who were looking for support. I treasure all these things up and praise God for them (especially my baby Nora!)

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There have been other moments this past year that felt surreal, heavy and empty at the same time because Lucy wasn’t in them:

The play date where all the babies have their preschool siblings along too but three year old Lucy is missing. I’m supposed to choke down my chicken nuggets and smile like everything is normal. I’m the only one who sees the empty space where she should be.

Folding up and putting away her empty stocking on Christmas Eve after the other three have been filled with toys and chocolate.

Telling her brothers that I am sorry, I don’t know what she would look like today and watching their hot tears stream down.

Suddenly realizing in the middle of an English lesson that the little girl I’m teaching is the exact age that Lucy would be today. Her big brown eyes staring up at me, her little laugh. Would Lucy look like that? I don’t even know what her laugh sounds like. I weep for my baby girl the entire drive home.

Over the course of this year God has been teaching me to pause right then and ponder the painful moment, gather it up and give it to God to be redeemed later. I’m learning to trust that He WILL redeem even that terrible moment. Every tear shed, every time the weight of grief feels too heavy to bear, every single thing I miss with Lucy will be redeemed, repaid and restored. God can redeem the deepest loss, even your loss. He can bring beauty from ashes, He can even heal parts of your heart that you thought were broken forever. Some things can never be mended until we get to heaven, but these things that He does redeem on earth are our foreshadowing of the glory and restoration to come.

If you are reading this I have prayed for you. I’ve prayed for your 2017, that God would bring about the most beautiful redemption in your life. I’ve prayed for your healing and for your joy, that God would give you the desires of your heart and would grant you the request of your lips. Be bold and ask Him for the thing you so desperately want. Gather up all of your hurts and hand them over to Him to be redeemed. Those who sow with tears will reap with songs of joy.

Psalm 126  When the Lord restored the fortunes of Zion, we were like those who dreamed. Our mouths were filled with laughter, our tongues with songs of joy. Then it was said among the nations, “The Lord has done great things for them.” The Lord has done great things for us, and we are filled with joy. Restore our fortunes, Lord, like streams in the Negev. Those who sow with tears will reap with songs of joy. Those who go out weeping, carrying seed to sow, will return with songs of joy, carrying sheaves with them.

Where Is Your Sting?

This is a heavy post. My grandfather is dying right now. He is 93 years old and he’s in a hospital bed in my old bedroom in my parents’ house down the street. We have been keeping vigil by his bedside for the past four or five days, never leaving him alone for more than a few minutes at a time. Days ago we thought that he surely wouldn’t last another day, another hour, but the body that has worked well for almost a century is not willing to give up so easily. It is heartbreaking to watch, emotionally draining and depressing. We know that he is going to heaven and that he has wanted to go to heaven ever since my grandmother died five years ago, but it is still painful to watch the transition. I keep thinking about Lucy and my three babies on earth. Liam, Asher and Nora will all die one day and I probably won’t be here to make sure their transition to heaven will be as comfortable as possible. This is a distressing thought. Will my babies be well loved in their last hours? Will they be scared? Will they be in pain? My Daddy-D, he is somebody’s baby boy, and that’s how we are treating him…the way we want our children to be treated when they die.

Nora and Daddy-D have had a special bond, especially these last few days. She loves sitting on his bed next to him, patting him and babbling at him, even saying his name. His face would light up when he saw her in the last few days that he was aware and still in control of his body.

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Daddy-D being silly with Nora


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Playing peekaboo with Daddy-D


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Nora gives love pats while my sister moistens and cleans Daddy-D’s mouth.

She played peekaboo with him, touched his nose, laid her head on him, and all I could think of was Lucy doing the same things with him soon, in heaven. How long until he goes from playing with my daughter Nora, to playing with my other daughter Lucy? Days? Hours? Minutes? And he will get to know her before I do, my own daughter. How do I process this?

As he has slowly deteriorated and faded, we have been speaking more about the people who are waiting for him in heaven. My mom encourages him, “Mama is waiting for you, Daddy! She can’t wait to see you!” He seems at peace most of the time. I have to mention Lucy…”And you will get to see Lucy soon, Daddy-D! Tell her…” What do I say? What kind of words can I send with him that can adequately convey my love to her, my ache for her, my inability to live without her here? There are no words in the English language powerful enough to express how I feel about her. “Tell her that Mommy loves her and misses her so much. Tell her about her sister and her brothers. Tell her how fun it was playing with her baby sister. I’m jealous that you get to go meet her.” The words are limp. Not enough. He can’t really move but his eyes fill with tears and the tears spill out the sides, running down his face. He tries to speak but we can’t understand what he wants to say.


As I watch my Daddy-D get closer and closer to his last breath I think of the verse-

1 Corinthians 15:55  Where, O death, is your victory? Where, O death, is your sting?

I know that Jesus conquered death, but these words don’t feel true because death seems so much bigger at the moment. Looming, mysterious, inescapable. None of us are getting out alive. I feel weighted down as he struggles to breathe. THIS is the best case scenario? One day, we will all be dead.

I ask God for His perspective, for His light to brighten our darkness. And He gives me thoughts that comfort: Death is inescapable, but for those who love God and believe in Him, it is only a tiny slice of time; a moment. It doesn’t define us, it isn’t the end, it is just a transition we all have to go through. For those of us who are left behind, death is a separation from the people we love, and that is why I hate it. For those who are dying or have already gone ahead, death is a link to the people we love, and that is why I appreciate it. Yes, death is real and it affects us all, but there is also SO MUCH LIFE. Daddy-D experienced so much life. He lived for 93 years! When my mom was a tiny girl he promised her that he would tell her he loved her every single day, and he did. He kissed her and doted on her and told her she was beautiful and she believed him. He loved his wife and his kids and his grandchildren well. He loved God and was faithful to Him. Daddy-D was a leader, a WWII veteran, a successful engineer and he LOVED giving advice. When we were younger he would say, “Look at my old, wrinkly face. Would you swap faces with me? No? What if I gave you ten dollars, would you trade faces with me then? No? What if I gave you a million dollars, would you trade faces with me then? No? Then you are a millionaire right now, at this very moment.” And I felt like a millionaire. He often reminded us, “Deciding to follow God is the most important decision of your life. Deciding who to marry is the second most important decision you will ever make.” I could write so much about his life, but the point is that he LIVED. And after his last breath, when his life here on earth comes to an end, there is more life. Everlasting life stretches out ahead of him. Thank you, Jesus for this gift. What if we could see death for what it really was? Just a thing we all have to get through, like puberty, or winter (or summer if you live here in Alabama.) It does not loom, it does not define us. THERE IS SO MUCH LIVING TO BE DONE, before death and after. Having this assurance brings the most amazing peace, even here in the valley of the shadow of death.

If Daddy-D could tell you one thing right now as his time on earth dwindles, I know he would ask, “Have you made the most important decision of your life?” Because that decision is what defines your eternity, and when you accept the free gift of life that Jesus offers, you rob death of it’s power.

Romans 10:9  If you confess with your mouth that Jesus is Lord, and believe in your heart that God raised Him from the dead, you will be saved.

I love you Daddy-D. Give Lucy so many kisses for me.

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Happy Birthday Nora!

Happy first birthday to my beautiful baby Nora.

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I still can’t believe she is here alive and thriving. I probably started writing at least four different blog posts about this huge milestone and how amazing this past year has been, but most of them ended up being about me and not Nora. I also ran out of time and realized that today I wanted to spend my time just hanging out with my girl instead of editing blog posts. Now she is sleeping soundly in her crib after a fun day and I’m typing up a quick happy birthday post. I decided last minute to take the boys to the beach for a night (we’re leaving early tomorrow morning and they have no idea!) so I have to pack for the trip. I will write more about her birthday when I get back.

We had such a great, laid back day. Asher came running out of his room really early asking, “Where is baby Nora?” I told him she was still asleep and he said, “Oh, well, what does she look like?” I broke the news that she still looks the same as she did yesterday. “Oh, no! You mean she still looks like she’s zero? Can she at least walk?” Poor guy. He was expecting her to be an instant toddler when she turned one. After everyone woke up, we sang happy birthday to her this morning as she stuffed a giant pink cookie in her mouth.

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She opened some of her presents while the boys crowded around. She will open the rest of her presents at her party this coming weekend. Liam and Asher loved watching her open presents.

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Also, please ignore her crazy outfit…apparently that’s what I put her to bed in last night! Nora’s favorite part of her birthday was when we took her to a pet store and let her look at the little animals. Also, notice the tiny puppy she brought along to the pet store…my heart cannot handle the cuteness.

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DSC_0491It is hard to believe that this was one whole year ago.

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We are so incredibly thankful for Nora’s life and we love watching God use her already as a light to others. Happy birthday precious girl. We love you! Here are a few pictures from our DIY birthday shoot:

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And this is my favorite one…like she’s looking up at her big sister:

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To the Doctor Who Saved My Daughter’s Life

Dr. Moise,

Our miracle baby Nora will be a year old in a couple of days. We know that without you, this past year would have been very different and Nora would not be here with us today. One whole year of kisses. One whole year of full arms and mended hearts, of doting big brothers and tiny dresses and a warm little body on my chest. One whole year of little details emerging, revealing who our daughter is…

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Those big brown eyes with long, dark eyelashes; her content and happy spirit; her sensitive heart; her desperate love for animals. She’s everything to us. She is her Grandma’s first living granddaughter, our first living daughter, my rainbow baby, the pride and joy of her brothers, someone’s future wife, someone’s Mommy. Thank you for seeing that, for seeing her value before she was even viable. You treated her like the most special baby in the world, even though I knew that she was just one of the many babies you helped on a daily basis. Thank you for recognizing how important this little life was to us, and for treating her with respect before she even took her first breath.

It is rare to find a doctor who is so generous with his time. I still remember emailing you, grasping for answers and a glimmer of hope after Lucy died. You didn’t know me. I wasn’t your patient or a family friend or anything, but ten minutes after I sent that email I couldn’t believe it when my cell phone rang showing an incoming call from Houston. You talked to me for 45 minutes, sharing your opinion about what happened to Lucy and discussing our possibilities for another child. I remember how much that meant to me at the time; a gesture of kindness from a stranger who thought Lucy’s life was important enough to spend his time discussing. Every single time someone contacts me with questions about anti-kell antibodies or advice about what their treatment should look like I give my time gladly knowing how much it will mean to them.

Thank you for thinking outside of the box and pushing for better treatment options long before Nora was even conceived. Thank you for not accepting, “This is the way it’s always been done” or, “There’s nothing we can do.” Those ideas of yours saved her life and the new treatment you are working on now will hopefully save many more lives, maybe even my grandchildren. And when you save a baby’s life, you don’t just save a baby’s life. You save the parents from living the rest of their days without their child. You save the grandparents, the cousins, the siblings and the aunts and uncles from a devastating heartache.

We will always think of you on Nora’s birthday and tell her about you when she gets older. Liam and Asher know who you are. In our family, Dr. Moise is a household name. We want our kids to know how one life can be used by God to change the lives of other people for good. We will always be grateful for the priceless gift you have given us, our Nora Juliet.

With love,

Josh, Bethany, Liam, Asher and Nora Weathersby

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