Lucy’s third heaven birthday is coming up at the beginning of February. I wonder what kind of presents we would be buying her if she had been born alive? I wish we were preparing to celebrate her third birthday like we are getting ready to celebrate Liam’s seventh birthday and Asher’s fifth birthday…with presents, cakes, parties, friends and family. What I really want is for her to just be here with me and for all the time I’ve missed with her to be made up. Obviously, these things can’t happen but there is something that YOU can get her for her birthday. I would love to see how her story has impacted you. It brings me so much joy and comfort when I realize that GOOD has come out of her death. I have a big favor to ask: If you have been impacted by Lucy’s story would you be willing to share that with me? If your baby has been helped by our experience with anti-kell antibodies, if you have been comforted in a time of mourning, if your faith has been strengthened, if you have been encouraged in your journey to build your family or if you have been impacted in some other way, could you email me at firstname.lastname@example.org and tell me about it? Or you can just leave your message in the comment section here. It doesn’t have to be long or well written, just a sentence or two telling how you have been encouraged. That would mean so much to me. I would love to honor Lucy by sharing your story here on her birthday. If you DON’T want your experience shared on my blog just specify it in your message. Let’s all come together and show the world that even the smallest babies and the shortest lives can have a BIG impact on the world. Thank you all ❤
Our family has been enjoying our little Nora so much lately. She is probably the happiest, most laid back baby I have ever encountered. It’s almost like she KNOWS how amazing it is that she’s alive and she enjoys being with us so much.
My mom said the other day, “She just doesn’t seem REAL.” Nora is the embodiment of joy and light. I am constantly amazed that even with such a violent, dangerous entry into the world she is so peaceful. Our lives are so different now that Nora is here in our family.
It is mind boggling to actually be experiencing JOY again when only two years ago I felt like I literally couldn’t make it through another hour because of the pain I was in.
It has been almost three years since my daughter Lucy died. Only in the past few months have I really noticed how much healing has taken place. This past Halloween was the first holiday I was actually able to celebrate (although most of it was spent in the ER with Nora.) I looked forward to picking out costumes with the boys and finding something adorable for Nora to wear. I enjoyed Thanksgiving with my family and to have Nora sit with us around the table felt like such a miracle. I was even excited about Christmas this year. Of course, I cried for Lucy on Christmas and had that heavy, fearful feeling of loss in my chest, but I was also able to enjoy Nora’s first Christmas. In years past I would dread Christmas for weeks before it arrived because it seemed impossible to celebrate without Lucy here. So many huge healing steps have happened lately. I am able to notice and enjoy things like the changing seasons, Liam’s school activities and Asher’s preschool theme days. I am actually starting to care about small, “meaningless” things like my hair and the weather and our family budget. I can invest in relationships again and actually absorb what other people are saying. I am able to go to Target without having an emotional breakdown and I can attend family functions again. I have really sad, dark days sometimes, but they are coming less than they used to. Birthdays are still very hard for me and singing the Happy Birthday song around a cake full of candles is almost unbearable, even when it’s my own children’s birthdays, but I’m optimistic that that will change in the future.
When I think back to the weeks and months after Lucy died I realize that this healing that is just now taking place was expected of me then by many people. We had just moved into a new house the week before Lucy died and many people (with good intentions, I know) chose to acknowledge the new house but not my new daughter who died. I was asked many times how we were enjoying our new house. I was so deep in the grief fog that sometimes I thought, “What new house?” I wasn’t even aware of my surroundings and I was in no shape to actually care about or enjoy the house I was living in. Most people thought I would be healing after several months. They expected me to be able to come to family functions (where triggers lurked behind every corner) and to celebrate holidays and actually engage in small talk. I know that the people who expected these things of me just hadn’t experienced a loss like this, and they didn’t understand how it felt. I didn’t even know how it felt until it happened and even then I was so impatient with my grieving. I was exasperated after several months when the healing didn’t come and the grief weighed me down even MORE than before. But now that the healing is starting to take place I know that it takes YEARS, not months, for the inner healing to start showing on the outside. The pain is only just now lessening. I’m amazed that I have learned how to pull my mind away from the grief and see past it and live in the present. This is a new skill, only learned after years of practice. After Lucy died my grief was like a wall that slammed down in front of me; like a solid, unpeneterable brick wall with giant graffiti letters scrawled across, “LUCY IS DEAD.” Everything else in the world was on the other side of the brick wall. I couldn’t see past the grief, no matter how hard I tried. How many people have the ability to will themselves to be able to see through a brick wall? Slowly over time that brick wall has thinned and morphed into something lighter and more transparent. It’s still there, right in front of my face and I know it won’t be removed until I get to heaven, but I can now see through it, like a net. Often a trigger will cause the net to come back into full focus and the sadness is debilitating, but I am learning how to bring the rest of the world back into focus.
There is no set timeline for grief but it is much more accurate to count in years than months when it comes to healing. If you know someone who has recently suffered a devastating loss, remember that the way you think the grieving person should be feeling after three months is the way they will probably feel after three years. Please be patient and let them grieve at their own pace. I felt such incredible pressure to “get over it” quickly. Well, the “it” is my daughter and I won’t ever get over her. I pressured myself as much as other people pressured me to heal before I was ready (as if I had a choice in the matter.) Now I wonder, what was the rush? Why the push to be “better” when I had no control over my healing pace? If I could do it again I would just sit in the grief and let myself feel whatever I was feeling without guilt or a need to please others. I would set up better boundaries and allow myself to say no to the birthday parties, the holidays, the trips to Target and the family vacations without feeling bad about it. I wish I knew back then what I knew now, that the healing will come on it’s own timeline and it will take much longer than I expected…but that it WILL come.
Psalm 30:5 Weeping may last through the night, but joy comes with the morning.
I have been part of a red cell antibody study since 2013 and have really enjoyed my experience donating plasma for them. They use my antibodies to create test kits for pregnant women. During the first trimester, all women are screened for antibodies through a simple blood test (using these test kits.) There are many different types of antibodies that need to be tested for such as anti-D, anti-kell, anti-E, anti-c, etc. Right now they are desperately searching for someone with anti-Fyb antibodies who would be willing to donate plasma for a good cause. If you have anti-Fyb antibodies please consider participating in this red cell antibody study. It’s a great way to earn some extra money and put those antibodies to good use. If you are interested or know someone who might be interested you can email me at email@example.com or contact Shannon Coates-Layne at 800-510-4003 firstname.lastname@example.org Thank you!